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The goal of the Global Dystonia Registry is to support future dystonia studies, including clinical and research trials. Although the focal dystonia's have many different manifestations, most experts believe they share a common pathogenesis or mechanism that causes the disorder. The common causes may be a similar gene defect, similar lifetime experiences, or both. Collecting information from different patient populations may help us identify the common features that they may share.
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Insight into dystonia and botox by Dr Marie-Hélène Marion, a leading Neurologist
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Dysphonia International is dedicated to improving the lives of people affected by spasmodic dysphonia and related voice disorders.
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American Dystonia Society, a 501c3 Foundation Serving the Dystonia Community dystonia.us
American Dystonia Society is dedicated to improving the quality of life of all people with Dystonia focusing on awareness, advocacy, support, and raising funds for research. The leadership of ADS is comprised of all volunteers with various forms of Dystonia and understands the needs of the Dystonia Community
Dystonia UK dystonia.org.uk
Providing support, information and advocacy for anyone affected by the neurological movement disorder known as dystonia
National Institutes of Health (NIH) | Turning Discovery Into Health nih.gov
Official website of the National Institutes of Health (NIH). NIH is one of the world's foremost medical research centers. An agency of the U.S. Department of Health and Human Services, the NIH is the Federal focal point for health and medical research. The NIH website offers health information for the public, scientists, researchers, medical professionals, patients, educators,
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The Institute is comprised of Neurologists and Neurosurgeon dedicated to a full spectrum of patient care and research in the areas of Parkinson's disease and movement disorders
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The aims of Dystonia Ireland are to promote and encourage scientific research into the causes and treatments of dystonia
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Dr. Friedman is making new pain treatments available to people suffering from chronic pain such as back pain, nerve pain, and fibromyalgia. Call for your appointment at our office in Palm Beach Gardens, Palm Beach County, Florida.
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Home | Rare Diseases Clinical Research Network rarediseasesnetwork.org
The Rare Diseases Clinical Research Network (RDCRN) is a National Institutes of Health-funded research network working to advance research in rare diseases.
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Daily science news on research developments, technological breakthroughs and the latest scientific innovations
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Orphanet orpha.net
The portal for rare diseases and orphan drugs
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Mental disorders and mental illness
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Medical News and articles you can trust from around the world. All content is written and reviewed by qualified health, medical and scientific experts.
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Celiac disease and gluten-free lifestyle news and support since 1995. Celiac.com was the first Web site dedicated to helping celiacs.
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Home - OMIM omim.org
Online Mendelian Inheritance in Man (OMIM) is a comprehensive, authoritative compendium of human genes and genetic phenotypes that is freely available and updated daily. The full-text, referenced overviews in OMIM contain information on all known mendelian disorders and over 15, 000 genes. OMIM focuses on the relationship between phenotype and genotype. It is updated daily, and the entries contain copious links to other genetics
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American Association of Neurological Surgeons aans.org
The AANS is the association that speaks for all of neurosurgery, and is dedicated to advancing the specialty of neurological surgery in order to promote the highest quality of patient care.
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We are the premiere advocate for legal and cultural change in Canada with respect to protecting human life and the family. Campaign Life Coalition is a national, non-profit organization with offices from coast-to-coast. We work tirelessly to heal the cultural insanity that leads our nation to tolerate the killing of 100, 000 pre-born Canadian children every year.