RD-ACTION : DATA AND POLICIES for rare diseases - RD-ACTION, the new Joint Action consisting of the member states of the European Union for rare diseases,
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A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world's leading rare disease patient groups to offer global online communities allowing people to connect around issues which affect them while living with a rare disease.
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