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Despite science’s best efforts, treatments for rare diseases have greatly lagged behind patient needs. It’s time to tackle the undone, the too difficult
Language: English
Official website of the National Institutes of Health (NIH). NIH is one of the world's foremost medical research centers. An agency of the U.S. Department of Health and Human Services, the NIH is the Federal focal point for health and medical research. The NIH website offers health information for the public, scientists, researchers, medical professionals, patients, educators,
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Official website of the National Human Genome Research Institute. The Forefront of Genomics.
UC Santa Barbara is a leading center for teaching and research located on the California coast - truly a learning and living environment like no other!
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NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases
Medical and health news service that features the most comprehensive coverage in the fields of neuroscience, cardiology, cancer, HIV/AIDS, psychology, psychiatry, dentistry, genetics, diseases and conditions, medications and more.
The FDA is responsible for protecting the public health by ensuring the safety, efficacy, and security of human and veterinary drugs, biological products, and medical devices; and by ensuring the safety of our nation's food supply, cosmetics, and products that products that emit radiation.
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The world's best scientists. The internet's smartest readers.
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Daily science news on research developments, technological breakthroughs and the latest scientific innovations
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Since 2006, the Mesothelioma Center has raised awareness for asbestos exposure & helped thousands of families find treatment & compensation.
We bring you the future as it happens. From the latest in science and technology to the big stories in business and culture, we've got you covered.
The ECRD is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.
China Briefing publishes legal, tax, accounting, HR & payroll news, plus publications, webinars & podcasts on doing business in China.
Home The Oregon Institute of Science and Medicine is a non-profit research institute established in 1980 to conduct basic and applied research in subjects immediately applicable to increasing the quality, quantity, and length of human
The Rare Diseases Clinical Research Network (RDCRN) is a National Institutes of Health-funded research network working to advance research in rare diseases.
The portal for rare diseases and orphan drugs
The American Optometric Association (AOA) is the leading professional organization for doctors of optometry, optometry students and paraoptometric staff, offering advocacy, professional development and practice management tools.
A safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world's leading rare disease patient groups to offer global online communities allowing people to connect around issues which affect them while living with a rare disease.
Today on Medscape : Get the latest medical news, clinical trial coverage, drug updates, journal articles, CME activities & more on Medscape. A free resource for physicians.
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High impact medical journal. Champion of better research, clinical practice & healthcare policy since 1840. For GPs, hospital doctors, educators, policymakers.
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AHRQ advances excellence in healthcare by producing evidence to make healthcare safer, higher quality, more accessible, equitable, and affordable.
MSF is an international, independent organisation. We provide medical assistance to people affected by conflict, epidemics, disasters, or exclusion from healthcare
Official site of the American College of Physicians. ACP provides advocacy, practice tools, clinical guidance, CME and MOC for Internal Medicine and more.
At Merck, we're following the science to tackle some of the world's greatest health threats. Get a glimpse of how we work to improve lives.