The GNEM-DMP is an ongoing study with two components, an in clinical physician reported component and an online patient reported component. The primary objectives of the Registry are to identify and gather information directly from participants with GNE Myopathy via a secure database. It is open to all GNE myopathy/Hereditary Inclusion Body Myopathy (HIBM)/Quadriceps-Sparing Myopathy (QSM)/Distal Myopathy with Rimmed Vacuoles (DMRV)/Nonaka Myopathy and HIBM Type 2 patients worldwide.
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A fine art and fine craft gallery showcasing a diverse collection of work from amazing Texas artists, including ceramics, wood, glass, mosaics and kinetic art.