goto carionfenn.orgCarion Fenn Foundation - Home
The Carion Fenn Foundation is a Registered Charity established to support the public & those impacted by Syringomyelia, Chiari Malformation, Chronic Diseases and Rare Diseases including Mental Health through a variety of programs supporting quality of life.
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National Organization for Rare Disorders | NORD rarediseases.org
NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases
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Orphanet orpha.net
The portal for rare diseases and orphan drugs
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Medical and health news service that features the most comprehensive coverage in the fields of neuroscience, cardiology, cancer, HIV/AIDS, psychology, psychiatry, dentistry, genetics, diseases and conditions, medications and more.
Canadian Organization for Rare Disorders raredisorders.ca
Home | Rare Diseases Clinical Research Network rarediseasesnetwork.org
The Rare Diseases Clinical Research Network (RDCRN) is a National Institutes of Health-funded research network working to advance research in rare diseases.
National Human Genome Research Institute Home | NHGRI genome.gov
Official website of the National Human Genome Research Institute. The Forefront of Genomics.
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Sleep Foundation | Better Sleep for a Better You sleepfoundation.org
SleepFoundation.org is the leading source for evidence-based, medically reviewed sleep health information and in-depth product testing.
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The California Community Foundation (CCF) is a vibrant and enduring resource committed to fulfilling the promise of Los Angeles County. We are steadfast advocates for those who struggle. We are trusted stewards of charitable passions. And we are thoughtful investors in systemic change.
Genetic Alliance UK geneticalliance.org.uk
Atlanta Neurosurgeons | Spine Surgeon | Atlanta Brain and Spine Care atlantabrainandspine.com
Our Atlanta neurosurgery practice is at the forefront of treatment of brain and spine disorders. Our spine surgeons go the extra mile for our patients.
Conquer Chiari conquerchiari.org
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Ella the Cavalier King Charles Spaniel fightforella.blogspot.com
Chiari Connection International (CCI) --- The Best In Chiari Resources Worldwide!! chiariconnectioninternational.com
Chiari Connection Internation is dedicated to providing information and support for people affected with Chiari, and other related disoders, including Tethered Cord Syndrome, Ehlers Danlos Syndrome, and Syringomyelia
ASAP » American Syringomyelia & Chiari Alliance Project – Chiari malformation and syringomyelia information asap.org
ASAP'S MISSION To improve the lives of persons affected by Syringomyelia, Chiari Malformation and related disorders while we find the cure Newly Diagnosed? Click here to get information FOR PATIENTS, FAMILY & FRIENDS
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Spina Bifida Association - Research, Advocacy, Education, and Support spinabifidaassociation.org
Working to build a better and brighter future for all those impacted by Spina Bifida.
Chiari-Life chiari-life.blogspot.com
Welcome to the Ann Conroy Trust CIO annconroytrust.org
We are a charity dedicated to providing information & support about Syringomyelia, Chiari Malformation, and associated conditions.
Spina Bifida Family Support spinabifidasupport.com
Spina Bifida Family Support is located in North Central Indiana and are here to assist families in providing on-going emotional support, provide practical information and education to families that are raising a child or children with spina bifida.
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Living with Arnold Chiari Malformation Type 1 (ACM1) adriannecm1.blogspot.com
Congenital Heart Defects Support Community – Support Group for people affected with Congenital Heart Defects atrialseptaldefectsupport.org
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Chiari Carnival chiaricarnival.blogspot.com
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Home | Princeton Brain, Spine, and Sports Medicine princetonbrainandspine.com
Serving New Jersey and Pennsylvania, we are pioneers in minimally invasive surgery with precision care, centered around you.
Welcome Members - Chiari Support - Patients Community chiarisupport.org
Welcome to Chiari Support Patients Community! Our mission at Ben's Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them. Chiari malformation, is usually present at birth and occurs at the back
For the Love of Ollie - touching story about a Cavalier King Charles Spaniel dog to raise awareness of canine syringomyelia and help canine disease research. fortheloveofollie.com
Story of a brave little dog's fight against syringomyelia. Information and support for dog owners, dog breeders and veterinarians.
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There are many different headache causes, types and treatments. Find the latest information that can relieve your migraine and headache pain!
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Jho Institute for Minimally Invasive Neurosurgery Department of Neuroendoscopy drjho.com
Dr. Jho has developed numerous minimally invasive innovative surgical treatments for spine and brain disoders such as disc-preserving functional disc surgery, endoscopic skull base surgery through a nostril.
Bergen County Medical Malpractice Attorneys | Goldsmith & Goldsmith, LLP goldsmithlegal.com
Goldsmith & Goldsmith, LLP. Experienced attorneys serving New Jersey in medical malpractice claims. Lawyer with medical experience. Call 201-429-7892.
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Cancer Support Community | Explore Women's Empowerment and Cancer Survivor Stories - Fight Like a Girl fightlikeagirlclub.com
What began as a cancer support community has evolved into a group that supports women's empowerment. You will find cancer survivor stories, support, and inspiration as well as information and inspiration for other life-limiting diseases. Visit Fight Like a Girl today to join the fight!