CARE-NMD: Improving care for Duchenne muscular dystrophy
Improving care for Duchenne muscular dystrophy
Parent Project Muscular Dystrophy (PPMD) fights to end Duchenne muscular dystrophy. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Charley's Fund accelerates the development of life-saving treatments for Duchenne muscular dystrophy and supports solutions to translate promise into results.
Duchenne Muscular Dystrophy (DMD) is a progressive genetic muscular system disease that affects 1 in every 5, 000 boys.
We provide care and support for people affected by muscle-wasting conditions, fund vital research and campaign for better services
Our kids our nation is an exquisite coffee table book that features our Australian children. It is a unique fundraising project for Muscular Dystrophy Australia. Children from newborn to 15 years old will be professionally photographed by an accredited photographer. One of the images taken of your child will be guaranteed to appear in this book.
Pharmaceutical company in Switzerland committed to research & development of medicines for patients living with mitochondrial disorders & rare diseases.
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AFM-Téléthon is an association composed of patients and their families who are affected by a genetic, rare, progressive and severely disabling disease
Duchenne Muscular Dystrophy - Jesse's Journey - The Foundation for Gene and Cell Therapy provides funding for research into Duchenne Muscular Dystrophy. This charitable organization targets neuromuscular diseases like Duchenne MD through research in gene therapy, cell therapy and genetics.
Parent Project Muscular Dystrophy's mission is to end Duchenne muscular dystrophy. We accelerate research, raise our voices in Washington, demand optimal care for all young men, and educate the global community.
Neuromuscular disease is rare compared with other disease s. Three or four persons in 100.000 inhabitants live for example with the muscle dystrophy
Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world.
ALS, Motor Neuron disease, muscular dystrophy, muscular gravis, multiple sclerosis, syringomyelia, progressive spinal muscular atrophy(SMA), amyotrophic lateral sclerosis (ALS)